Foundation Update

Hi, If you are new to our community, welcome. If you are back after our brief internet hiatus, welcome back! I want to share a brief history for those of you just discovering our community. My mother, Helen Smith, founded the Glanzmann’s Research Foundation a few years after my little sister, Julia, was diagnosed. It […]

Julia and Helen Smith on The Means Report

When Julia Smith was diagnosed with a rare bleeding disorder as an infant, her mother, Helen, went on a search for answers… and a cure. Helen Smith founded the Glanzmann’s Research Foundation. She has since been honored in the CSRA with the Giving Your Best Award, and on a national level with the Jefferson Award. […]

Family’s quest to cure disorder heads to TV show

Originally Published on AugustaChronicle.com July 31, 2010 Helen Smith could feel that the baby was wet as she picked her up in the dark bedroom and carried her to the bathroom. It wasn’t until she turned on the light that she saw the blood. “It was blood, everywhere,” Smith said. “She had just nicked her […]