Staying Safe on the Trail: The Road Less Traveled

By Elizabeth G. Harvey

Can you embrace outdoor adventures with Glanzmann Thrombasthenia (GT) or a bleeding disorder?

I used to think the answer was a resounding NO! Live safely. Avoid potential harm at all costs. But doesn’t your soul crave overcoming challenges and being thrilled? For those of us living with a platelet disorder, even everyday activities can require more thought and preparation. Hiking is no exception. This blog will offer recommendations to manage risks while enjoying the journey.

Hiking: Benefits of Physical Activity

Despite the extra precautions, hiking helps me feel stronger, grounded, and more in control of my body. As a youth, I was prohibited from playing sports due to the risks involved, but as an adult, I have learned to work with my body, not against it. For me, hiking is one way I push myself and embrace the joy of being alive!

Extra Planning Required — But Oh the Rewards

• Majestic views

• Mental clarity

• Pride of reaching new summits

• Physical endurance and fitness

Understanding the Risks

I don’t let Glanzmann Thrombasthenia stop me from living a full life, but it means I must be strategic about it. Especially if the terrain is rugged or remote, there are some risks:

• Nosebleeds: Dry air can lead to the drying and cracking of the nasal mucosa, making it difficult to stop.

• Falls or Cuts: A stumble could lead to bleeding that takes longer to stop.

• Blisters: Even minor foot wounds can be problematic.

• Delayed Emergency Response: Getting medical help on a trail takes time, so prevention is essential.

My Top Hiking Safety Tips

1. Choose Trails Wisely
Use well-maintained trails. Avoid steep, rocky, or remote areas unless you are hiking with a group and have proper support.

2. Use the Buddy System
Never hike alone. Go with a friend or a hiking group. Inform them about your condition and what to do in the event of an emergency.

3. Wear Protective Clothing
Long pants and sleeves can help reduce the risk of scratches and scrapes. Protect your feet with sturdy, well-fitted hiking boots and keep your socks dry.

4. Prepare a Specialized First Aid Kit
Include extra gauze or cotton (such as tampons), hemostatic agents (like tranexamic acid, liquid bandage, or topical sprays), saline solution, Vaseline or ointment, and pressure bandages.

5. Know Your Limits
Don’t push yourself to hike too far or too fast. Listen to your body and take breaks when you need them. Increasing your heart rate may cause problems if you have a scrape or a nosebleed.

6. Check in with Your Doctor
Before embarking on any major hiking trips, especially overnight ones, consult with your hematologist to discuss your plans and review your medications.

7. Know Basic Bleeding Control
Make sure you and your hiking partner know how to stop bleeding, apply pressure correctly, and when to seek emergency care.

Closing Thoughts

If you or someone you love has Glanzmann Thrombasthenia, don’t let it stop you from exploring the great outdoors. Prepare strategically and remember that each step is a quiet act of strength! While GT means that I’m more prone to bleeding and bruising, I’ve found that with the proper precautions, hiking can still be a safe, fulfilling, and empowering experience.

I recently completed a four-day whitewater rafting trip down the Colorado River, followed by a 7.5-mile hike up the Bright Angel Trail, which involved climbing almost 5,000 feet in elevation while carrying my camping gear. This was a long-awaited trip for my family to celebrate my son’s graduation. While I developed a nosebleed due to the arid conditions, my first aid kit and tranexamic acid were invaluable. It is a memory I will always treasure. We discovered during the hike that only 2% of Americans ever undertake this trek. Take the path less chosen, and don’t limit yourself from participating in activities that you find exciting and fulfilling — just do your best to prepare wisely. I’m so grateful to the Lord for allowing me to live this beautiful life, and I’m not sure I would appreciate it as much without Glanzmann being a part of my story.

Ever Onward!

Do you enjoy hiking or outdoor adventures?

Please share your triumphs, tips, or comments with us! Please send us an email at info@curegt.org