Foundation News & Updates

Resilience with Glanzmann’s Thrombasthenia: Robie’s Story

November 5, 2023

In this podcast, host Taylor and guest Robie share a heartfelt conversation about Glanzmann’s Thrombasthenia, a rare genetic bleeding disorder. They discuss Robie’s journey, struggles, surgeries, and life lessons. The dialogue covers adapting to the disorder, family decisions, and not letting it limit one’s life. Want to Sponsor the Podcast? Contact Us Here Have GT?…

Podcast about Glanzmann's Thrombasthenia on Mom's side.

Mom’s Side of Glanzmann’s Thrombasthenia

February 5, 2023

Jessica and her husband, Nick, were informed of Mia’s Glanzmann’s Thrombasthenia diagnosis when Mia was just four months old. Now, two years after that diagnosis, Jessica is her daughter’s biggest advocate and is determined to spread awareness and education throughout her community. Join us with special guest host Glanzmann’s Research Foundation’s secretary, Melissa Zdziarski, as…

The High and Low GT Podcast explores Glanzmann's Thrombasthenia in episode 2.

The Highs and Lows of Glanzmann’s Thrombasthenia

January 1, 2023

In this episode, we turn inward and speak with our very own Peter Zdziarski and Julia Smith. They allow us to take a glimpse into their lives growing up with Glanzmann’s Thrombasthenia by sharing their highs and lows throughout the years. These two jump outside of their comfort zones to encourage more people within the…

A baby with glanzmann's thrombasthenia and a woman in a car.

My son’s rare life-threatening illness has him bleeding in A&E weekly – I’m worried about the strikes

December 20, 2022

Last Saturday night, I frantically rushed to A&E with my four-year-old son Felix. He has a rare, life-threatening bleeding disorder called Glanzmann’s thrombasthenia. Felix’s condition means his blood has difficulty clotting, which results in spontaneous and life-threatening bleeds at any time, frequently from his nose and mouth. On a day-to-day basis, even a slight bump or scrape in…

Dr. David Wilcox discusses Glanzmann's Thrombasthenia on his podcast.

Bruised Not Broken: Life with Glanzmann’s Thrombasthenia

December 4, 2022

On this official GRF Podcast, we focus on everything and anything Glanzmann’s Thrombasthenia. From treatments to community spotlights, experts, and of course, the most current updates on the cure. The GRF podcast is sure to have something of interest to the GT community. Please visit our website at and consider donating to help us…

A group of children dressed as Santa Claus pose for a photo at a Glanzmann's Thrombasthenia event.

Santa Dash friends raise cash for Wiltshire Air Ambulance charity

November 22, 2022

FOUR friends have helped a Trowbridge schoolboy raise more than £1,300 for the Wiltshire Air Ambulance by joining more than 150 people in a Rudolph and Santa Dash on Sunday. Oliver Brooking and four of his friends raised the cash in sponsorship as a thank you to the Wiltshire Air Ambulance charity for saving his…

A medical podcast discussing Glanzmann's Thrombasthenia with two women and a man.

Will hemophilia continue to define us? Plus, another bleeding disorder often mistaken for vWD!

October 28, 2022

Patrick shares life post-ankle surgery and wonders if everything from now on will be impacted by hemophilia. Plus, a fantastic interview with Hemophilia of Georgia‘s Director of Advocacy, Michelle Conde, AND members of. Glanzmann’s Research Foundation, Inc., Peter Z, and Taylor Anne. We’ll cap the episode with another Let’s Talk mental health segment on acknowledging…

A group of red blood cells in a background indicative of Glanzmann's Thrombasthenia.

Goa boy’s rarest blood disorder may be identified as disability

October 26, 2022

PANAJI: Unexplained red and purple bruises began appearing on Jacob Fernandes’ (named changed) body when he was still a toddler. At age two, after several rounds of hospitals and laboratories, Jacob was diagnosed with the rarest of disorders, Glanzmann’s Thrombasthenia, which causes the patient to bleed easily, sometimes for days. Only 500 cases of Glanzmann’s…

A woman with Glanzmann's Thrombasthenia in a tan blazer smiles for the camera.

Mary M. Gooley Humanitarian of the Year: Esmeralda Vázquez

August 29, 2022

Living with Glanzmann’s thrombasthenia, an ultra-rare disorder, could be daunting for some. But for Esmeralda Vásquez, it’s her reason for giving back, raising her voice, and being a powerful advocate for all people with rare blood and bleeding disorders. Over the years, Esmeralda’s name has become synonymous with health equity and patient-centric care. She is…

Two pictures of a girl with Glanzmann's Thrombasthenia in a hospital bed and overalls.

Cheyenne McNeilly is battling Glanzmann’s Thrombasthenia

August 15, 2022

Glanzmann’s Thrombasthenia is a rare disorder that causes Cheyenne’s body to bleed constantly. CLEVELAND COUNTY, N.C. (WBTV) – You never, ever know what anyone else might be facing. Please meet Cheyenne McNeilly, a rising seventh-grader at Burns Middle School in Cleveland County. She was born in 2010 in Shelby with a cone-shaped head and some…

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