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Rare Across America
Join us for Rare Across America this February and March to meet your new and re-elected legislators, share your story, and make rare diseases a priority in the 117th Congress. Haz clic aquí para obtener información en español y para registrarte. WHEN February 22 – March 5, 2021 (Virtual Congressional meetings on March 3rd and…
Foundation Update
Hi, If you are new to our community, welcome. If you are back after our brief internet hiatus, welcome back! I want to share a brief history for those of you just discovering our community. My mother, Helen Smith, founded the Glanzmann’s Research Foundation a few years after my little sister, Julia, was diagnosed. It…
Julia and Helen Smith on The Means Report
When Julia Smith was diagnosed with a rare bleeding disorder as an infant, her mother, Helen, went on a search for answers… and a cure. Helen Smith founded the Glanzmann’s Research Foundation. She has since been honored in the CSRA with the Giving Your Best Award, and on a national level with the Jefferson Award….
Could Bacon Stop Nose Bleeds?
Michigan doctors who used cured pork to stop a nosebleed won a 2014 Ig Nobel prize, awarded by the Annals of Improbable Research magazine at Harvard University for especially imaginative scientific achievements. Dr. Sonal Saraiya and her team at the Detroit Medical Center decided to try the folk remedy as a “last resort” after failed…
Family’s quest to cure disorder heads to TV show
Originally Published on AugustaChronicle.com July 31, 2010 Helen Smith could feel that the baby was wet as she picked her up in the dark bedroom and carried her to the bathroom. It wasn’t until she turned on the light that she saw the blood. “It was blood, everywhere,” Smith said. “She had just nicked her…
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