Foundation News & Updates

Today, on International Women’s Day, we celebrate the remarkable women in the Glanzmann Thrombasthenia (GT) community. From patients to mothers, sisters, caregivers, and advocates, these women embody strength, resilience, and unwavering dedication. The Strength of GT Patients Women living with Glanzmann Thrombasthenia face unique challenges daily. They show immense courage, from navigating spontaneous bleeding episodes…

We have exciting news! With Rare Disease Day and GT Awareness Day right around the corner, The Glanzmann’s Research Foundation is launching a dedicated blog section on our website, and we need YOU to be a part of it! This new space will be a platform for individuals living with Glanzmann thrombasthenia to share their…

Living with a rare disease like Glanzmann Thrombasthenia (GT) can feel isolating, but it doesn’t have to be. Finding a supportive community can make all the difference in navigating the challenges of this condition. At the Glanzmann’s Research Foundation (GRF), we know that connection, shared experiences, and support are vital in improving quality of life….

Every year, Rare Disease Day (February 28) and Glanzmann Thrombasthenia Awareness Day (March 1) provide an opportunity to shine a light on conditions that often go unnoticed. With over 300 million people worldwide living with a rare disease, awareness is the first step toward progress—whether it’s in research, treatment, or support for those affected. One…

Make a Difference in the Lives of Those with Glanzmann Thrombasthenia Giving Tuesday is a day for generosity, community, and hope. At the Glanzmann’s Research Foundation (GRF), we’re committed to advancing research for a cure for Glanzmann Thrombasthenia (GT), a rare and challenging bleeding disorder. With your support, we can continue funding groundbreaking research and…

We’re honored to announce that we’ve been selected as a 2024 RAREis Global Advocate Grant recipient by Amgen’s RAREis program. This recognition underscores our unwavering commitment to the Glanzmann Thrombasthenia community and the rare disease community at large, who inspire us every day with their strength and resilience amid care and research barriers. With this…

Cian O’Sullivan tells Sarah Horgan about the blood disorder affecting his children, the judgment of strangers when they see the resultant bruises, and the respite the family enjoys at Barretstown. A Cork father has opened up about how quick society is to judge as his children struggle to cope with an extremely rare blood disorder…

Glanzmann Thrombasthenia is a rare bleeding disorder characterized by the inability of blood to clot correctly due to a deficiency in platelet function. While managing this condition requires careful attention to various factors, including bleeding episodes and cardiovascular health, integrating physical activity into one’s lifestyle can improve overall well-being. Understanding Glanzmann Thrombasthenia Glanzmann Thrombasthenia poses…

In the latest episode of “Bruised Not Broken: Life with Glanzmann Thrombasthenia,” Melissa Zdziarski and guest Lauren Hurley share their heartfelt stories of navigating motherhood while affected by GT. Lauren, a GT patient from Massachusetts, recounts her lifelong battle with Glanzmann Thrombasthenia and her determination to become a mother through adoption. The episode explores the…

“We are currently making significant strides in our testing of the clinical vector, yielding promising results thus far. These efforts are crucial in generating the preliminary data necessary to pave the way for our application and subsequent approval of a clinical trial for gene therapy for Glanzmann Thrombasthenia (GT). Additionally, we are in the process…

In this podcast, host Taylor and guest Robie share a heartfelt conversation about Glanzmann Thrombasthenia, a rare genetic bleeding disorder. They discuss Robie’s journey, struggles, surgeries, and life lessons. The dialogue covers adapting to the disorder, family decisions, and not letting it limit one’s life. Want to Sponsor the Podcast? Contact Us Here Have GT?…

Taylor Burtz knew it was a leap of faith to fulfill a dream of her late mother, but she also knew it was a chance that had to be taken. “I’m still kind of in shock that the event happened. It’s very surreal,” said Burtz, the president of the Glanzmann’s Research Foundation, an organization her…