News

Foundation News & Updates

Board Officers with Dr. Wilcox

Board Officers Visit the Lab in Charge of Curing Glanzmann’s Thrombasthenia

May 9, 2022

The last weekend of April 2022 was quite the weekend, to say the least. Board officers visited Dr. David Wilcox in his lab (the Kelly Weil Laboratory) at the Medical College of Wisconsin. The lab has been working for decades to make many advances in gene therapy including a specific type of gene therapy that…

Rare Artist Contest

August 7, 2020

Two of our GT patients have entered the 2020 Rare Artist Contest and need your votes for a chance to go to Rare Disease Week in Washington DC! Learn More About RareArtist.org Vote for Peter’s Art Vote for Cathy’s Art  

Formal Statement Regarding Outside Organizations

July 28, 2020

The Glanzmann’s Research Foundation (GRF), a 501(c)(3) nonprofit corporation, has a mission to increase awareness of Glanzmann’s Thrombasthenia, provide a network of support for families navigating a Glanzmann’s Thrombasthenia diagnosis, and to raise funds for a cure. We would like to formally address the increase in conferences, events, and programs that are being marketed towards…

Foundation Update

July 22, 2020

Hi, If you are new to our community, welcome. If you are back after our brief internet hiatus, welcome back! I want to share a brief history for those of you just discovering our community. My mother, Helen Smith, founded the Glanzmann’s Research Foundation a few years after my little sister, Julia, was diagnosed. It…

Means Report

Julia and Helen Smith on The Means Report

July 17, 2020

When Julia Smith was diagnosed with a rare bleeding disorder as an infant, her mother, Helen, went on a search for answers… and a cure. Helen Smith founded the Glanzmann’s Research Foundation. She has since been honored in the CSRA with the Giving Your Best Award, and on a national level with the Jefferson Award….

Could Bacon Stop Nose Bleeds?

July 1, 2020

Michigan doctors who used cured pork to stop a nosebleed won a 2014 Ig Nobel prize, awarded by the Annals of Improbable Research magazine at Harvard University for especially imaginative scientific achievements. Dr. Sonal Saraiya and her team at the Detroit Medical Center decided to try the folk remedy as a “last resort” after failed…

When I was first diagnosed with Glanzmann Thrombasthenia, my parents were told there were less than 200 cases in the world.

June 26, 2019

Original post from Conversations: Find A Cure Magazine written by Douglas Lowell Conversations: Aidana, hi. Thanks for speaking with CONVERSATIONS today. Tell us about Glanzmann Thrombasthenia (GT))? What type of disease is this? How old were you when you were diagnosed? Aidana: Hello! Glanzmann Thrombasthenia (GT) is a rare blood disorder. The platelet count in…