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Foundation News & Updates

Physical Activity and Glanzmann’s Thrombasthenia

April 22, 2024

Glanzmann’s Thrombasthenia is a rare bleeding disorder characterized by the inability of blood to clot correctly due to a deficiency in platelet function. While managing this condition requires careful attention to various factors, including bleeding episodes and cardiovascular health, integrating physical activity into one’s lifestyle can improve overall well-being. Understanding Glanzmann’s Thrombasthenia Glanzmann’s Thrombasthenia poses…

A black and white photo of a woman kissing her mother while overcoming Glanzmann's Thrombasthenia.

Augusta Woman’s Legacy To Find Cure For Rare Bleeding Disorder Lives On

April 6, 2023

Picking up the torch her mother lit wasn’t what Taylor Burtz had planned for her life. But after Helen Proctor Smith died in October 2019, Burtz knew she and her sister, Julia, had to carry on her mother’s fight for a cure for a rare blood disease known as Glanzmann’s Thrombasthenia. “Me taking over was…

Gfr diagnosing Glanzmann's Thrombasthenia.

Diagnosing Glanzmann’s Thrombasthenia

April 2, 2023

April’s episode of Bruised Not Broken: Life with Glanzmann’s Thrombasthenia features Dr. Alan Michelson. Dr. Michelson’s achievements throughout his almost 50-year career in medicine are numerous. He is currently Professor of Pediatrics and Medicine, Emeritus at Harvard Medical School. He also serves as the Center for Platelet Research Studies’ Director Emeritus. He was formerly the…

A Glanzmann's Thrombasthenia patient's advocacy journey podcast with two women.

A GT Patient’s Advocacy Journey

March 5, 2023

Esme Vazquez found her calling in life through her work in occupational therapy. She believes having Glanzmann’s Thrombasthenia helps her empathize and better care for the children she works with. Advocating for her patients became a passion that spilled over into her personal life and fueled her drive to advocate for the voiceless in her…

Podcast about Glanzmann's Thrombasthenia on Mom's side.

Mom’s Side of Glanzmann’s Thrombasthenia

February 5, 2023

Jessica and her husband, Nick, were informed of Mia’s Glanzmann’s Thrombasthenia diagnosis when Mia was just four months old. Now, two years after that diagnosis, Jessica is her daughter’s biggest advocate and is determined to spread awareness and education throughout her community. Join us with special guest host Glanzmann’s Research Foundation’s secretary, Melissa Zdziarski, as…

The High and Low GT Podcast explores Glanzmann's Thrombasthenia in episode 2.

The Highs and Lows of Glanzmann’s Thrombasthenia

January 1, 2023

In this episode, we turn inward and speak with our very own Peter Zdziarski and Julia Smith. They allow us to take a glimpse into their lives growing up with Glanzmann’s Thrombasthenia by sharing their highs and lows throughout the years. These two jump outside of their comfort zones to encourage more people within the…

A baby with glanzmann's thrombasthenia and a woman in a car.

My son’s rare life-threatening illness has him bleeding in A&E weekly – I’m worried about the strikes

December 20, 2022

Last Saturday night, I frantically rushed to A&E with my four-year-old son Felix. He has a rare, life-threatening bleeding disorder called Glanzmann’s thrombasthenia. Felix’s condition means his blood has difficulty clotting, which results in spontaneous and life-threatening bleeds at any time, frequently from his nose and mouth. On a day-to-day basis, even a slight bump or scrape in…

Dr. David Wilcox discusses Glanzmann's Thrombasthenia on his podcast.

Bruised Not Broken: Life with Glanzmann’s Thrombasthenia

December 4, 2022

On this official GRF Podcast, we focus on everything and anything Glanzmann’s Thrombasthenia. From treatments to community spotlights, experts, and of course, the most current updates on the cure. The GRF podcast is sure to have something of interest to the GT community. Please visit our website at curegt.org and consider donating to help us…

A group of children dressed as Santa Claus pose for a photo at a Glanzmann's Thrombasthenia event.

Santa Dash friends raise cash for Wiltshire Air Ambulance charity

November 22, 2022

FOUR friends have helped a Trowbridge schoolboy raise more than £1,300 for the Wiltshire Air Ambulance by joining more than 150 people in a Rudolph and Santa Dash on Sunday. Oliver Brooking and four of his friends raised the cash in sponsorship as a thank you to the Wiltshire Air Ambulance charity for saving his…

A medical podcast discussing Glanzmann's Thrombasthenia with two women and a man.

Will hemophilia continue to define us? Plus, another bleeding disorder often mistaken for vWD!

October 28, 2022

Patrick shares life post-ankle surgery and wonders if everything from now on will be impacted by hemophilia. Plus, a fantastic interview with Hemophilia of Georgia‘s Director of Advocacy, Michelle Conde, AND members of. Glanzmann’s Research Foundation, Inc., Peter Z, and Taylor Anne. We’ll cap the episode with another Let’s Talk mental health segment on acknowledging…

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