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2024 #RAREis Global Advocate Grant Recipient
We’re honored to announce that we’ve been selected as a 2024 RAREis Global Advocate Grant recipient by Amgen’s RAREis program. This recognition underscores our unwavering commitment to the Glanzmann’s Thrombasthenia community and the rare disease community at large, who inspire us every day with their strength and resilience amid care and research barriers. With this…
Family’s quest to cure disorder heads to TV show
Originally Published on AugustaChronicle.com July 31, 2010 Helen Smith could feel that the baby was wet as she picked her up in the dark bedroom and carried her to the bathroom. It wasn’t until she turned on the light that she saw the blood. “It was blood, everywhere,” Smith said. “She had just nicked her…
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