Hi, my name is Md. Kaium Ali, and my nickname is Jibon. I live in Bangladesh with my family. I noticed this website from the Facebook GT support group. I am not good at English, so if I make mistakes, please forgive me. When I was 1. year old, my mother noticed bleeding from my eye corner. She got scared and took me to the hospital. Without any diagnosis, the doctor prescribed some regular medicine. A few days later, my family found some red and green colored bruising on my back. My family got worried and took me to the hospital for diagnosis, but the doctor found nothing. One year later,r I was playing games with my friends, and during the game,e when I jumped,d I saw bleeding come from my nose. At age seven, my doctor told me I had a tumor in my abdomen. Doctors thought the bleeding happened because of this. They advised me to have a minor surgery for it, and I did the surgery. But thdidn’tsing didn’t disappear. Day by day I was suffering from nose bleeding and gum bleeding. When I was 22 years old, I had a nose bleed that lasted 69 hours. The following year, the same things happened, but this time, it continued for almost 39 hours. We have noticed every year of February, March, and April I got nose bleeding, is this seasondon’t GT I don’t know?
Still, I have been suffering from nose bleeding. 26 yrs old we visited Dr. Azizul Haque Azad and heit’spected it’s maybe GT, for more accurate results he suggested meeting hematologist Dr. Moin Uddin and we did a visit. Dr. Moin Uddin personalmadedid my diagno,sis and the result was GT. But he said there is no treatment for GT. Six months later, we went to Bangalore, India, for further information about GT and wanted to know if there was a possible cure. But the answer was the same as what the Bangladeshi doctors had told us. So, at the age of 26, my family knows about GT.
Meanwhile, I have another chapter of my bleeding history. 2yearss ag,o on my post-graduation viva time, I had bleeding from my urine. Almost 1 week I was placed in the ICU room. Recently, I have had internal joint bleeding in my left knee. Doctors confirmed, and still, I have knee bleeding. Besides, I have an abscess on my back. Bangladesh is a poor country, so getting the proper treatment is challenging. Our medical treatments are not as good as in developed countries. But still, I am thanking my Allah for keeping me alive. I hope all of the GT patients get well soon.
