Faces of GT

Meet some of the faces of Glanzmann's Thrombasthenia from around the world

Eva Turek-Jewkes taking a selfie in front of Uluru.

Eva Turek-Jewkes

Statistically, GT affects one in one million people, making me one of twenty-five people in Australia who suffer from this disease. Medical opinion is that I’m out of options. Today I wait patiently for a donor in the hope of…

Two men named Patrick walking in a park with backpacks.

Patrick Muls

Belgium

Hey! I’m Patrick from Belgium. I was born in 1958. I got diagnosed with GT when I was still an infant. This has influenced my life ever since. No dangerous sports like football (soccer) or so. As the son of…

A woman in a black and white running top walking through tall grass.

Pauline Gauthier

France

My name is Pauline, I was born in France in 1993 and I still live in France. I was diagnosed with GT at 6 months (diagnosis not being possible, at the time, before 6 months). I had many problems with…

A woman in a blue and orange top standing in front of bushes.

Cassandra Peel

Tucson, Arizona

Hi, everyone! I’m Cassandra, and I am very thankful to have found such an amazing community in the GT family. I was born and raised in Brooklyn, NY where I was diagnosed with Glanzmann’s Thrombasthenia at Weill Cornell Medical Center…

A man with a beard and glasses is taking a selfie in front of a sign.

Md. Kaium Ali Jibon

Bangladesh

Hi, my name is Md. Kaium Ali and my nickname is Jibon. I live in Bangladesh with my family. I noticed this website from the Facebook GT support group. I am not good at English, so if I make mistakes…

Two individuals with glanzmann's thrombasthenia and their companion stand side by side.

Dan Beyer

Detroit, Michigan

Hi. My name is Daniel Beyer, but my friends call me Dan. As a child, I spent half of my life in the hospital until about the age of twelve. From twelve to my mid-thirties, I did not have many…

A woman with glanzmann's thrombasthenia holding up a drawing of a caricature.

Karen “Kaytee”

Louisiana

My story is long but since I am one of the oldest diagnosed Glanzmann’s Thrombasthenia patients in the United States. I must be upfront that my history is not a nice one, but I have learned in life, everyone’s life…

A woman with Glanzmann's Thrombasthenia wearing a blue dress.

Sherry Crutchfield

Fernandina Beach, Florida

Hi my name is Sherry Crutchfield, my husband and I live in Fernandina Beach Fl. I am a 54 years old with GT. I have never known anyone but me with this disorder until I found this curegt site of…

A woman with glasses holding a glass of wine.

Joy

I was born in 1944 and named for the great Joy that my parents were feeling. Five years earlier they had lost their first son to what doctors put down to haemophilia. He died as a result of having undergone…

A white person icon on a green background representing glanzmann's thrombasthenia.

Denise Kurta

Near Pittsburgh, Pennsylvania

One day I was on the internet and I came upon the GT web site. When I looked at a group picture on the site I gasped, I could tell who had GT from the tell tale bruises they had….

A young girl with glanzmann's thrombasthenia is smiling while sitting on a couch.

Amelie Iavicoli

Amelie was born on November 13, 2012 at 11:12 in the evening. She weighed just over 7 pounds and was considered a healthy newborn, aside from a couple purplish spots on her chest. She established her personality from the start,…

A white person icon on a green background representing glanzmann's thrombasthenia.

Sandra Fox

Australia

MY GT JOURNEY. I am now 74 years old and living in Australia. This meant I had a long time, 64 years actually till I was diagnosed with GT. Until then I was “just one of those women who bleed”….

A group of people sitting on a bench with a baby affected by glanzmann's thrombasthenia.

Peter Zdziarski

Holyoke, Massachusetts - pzdziarski@curegt.org

Below is an update to Peter’s story, originally written by his mom when he was 14 years old. You can find his original story at the bottom of this page. Update – 2020 Hi everyone, I’ve come a long way…

A white person icon on a green background representing glanzmann's thrombasthenia.

Michela Golia

Hi, I’m a 51-year-old woman with Glanzmann’s thrombasthenia. I was diagnosed at 6, after the death of my older brother, who had the same condition as me but was mistaken for hemophilia. Quite quiet childhood with various hematomas throughout the…

A young boy wearing an adidas t-shirt standing on a sidewalk at night with glanzmann's thrombasthenia.

Vincenzo

Naples, Italy

I am Anna, and this is the story of Vincenzo, a GT boy born on 12 December 2005 in Naples, Italy. At birth, after a long labor, Vincenzo was born with natural birth, without complications; he presented a great bruise…

A woman in a black hijab is posing for a photo, embodying diversity and inclusion.

Yosra

My name is Yosra, but I’m known as Tanja in the Group. I’m 24 years old! I was diagnosed with Glanzmann’s when I was six months. Since my illness is hereditary, my older cousin has the Glanzmann’s, so my mom…

A woman with glanzmann's thrombasthenia wearing ripped jeans and a white top.

Dezirya

Dezirya Merritt was born in Sept 2000 on her expected due date, and I was all so happy I had finally gotten a girl. I had three boys prior. Well, the doctor noticed she was jaundiced and ordered the special…

A group of veterinarians in front of a truck, highlighting glanzmann's thrombasthenia.

Emily

Hello! I am Emily, a 25-year-old with Glanzmann’s Thrombasthenia. My journey with GT started when I was only a few hours old. I developed purple marks (later found to be bruises) all over my body. The doctors and nurses referred…

Two women standing in front of a sign that says forever sisters, one of whom has Glanzmann's thrombasthenia.

Jyll

Toledo, Ohio

Hi, my name is Jyll and I was born March 24, 1973 in Toledo, Ohio. I was so glad to have found this website through Kaytee, one of my GT sisters because I’m not alone anymore! When I was born…

A young girl posing for a photo.

Luísa

August of 2006 was a month we were waiting for with a great deal of excitement. It would be the month of the birth of our first daughter, Luisa. After some complications and 14 hours of labor, Luisa came to…

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