Faces of GT
Meet some of the faces of Glanzmann Thrombasthenia from around the world
Eva Turek-Jewkes
Statistically, GT affects one in one million people, making me one of twenty-five people in Australia who suffer from this disease. My medical opinion is that I’m out of options. Today, I wait patiently for a donor in the hope…
Patrick Muls
Hey! I’m Patrick from Belgium. I was born in 1958. I was diagnosed with GT when I was still an infant. This has influenced my life ever since. No dangerous sports like football (soccer) or so. As the son of…
Pauline Gauthier
Diagnosed with Glanzmann Thrombasthenia at Six Months Old My name is Pauline, and I was born in France in 1993, where I still live today. At six months old, I was diagnosed with Glanzmann Thrombasthenia (GT)—a rare platelet disorder that…
Cassandra Peel
Hi, everyone! I’m Cassandra, and I am very thankful to have found such a fantastic community in the GT family. I was born and raised in Brooklyn, N, Y, where I was diagnosed with Glanzmann Thrombasthenia at Weill Cornell Medical…
Md. Kaium Ali Jibon
Hi, my name is Md. Kaium Ali, and my nickname is Jibon. I live in Bangladesh with my family. I noticed this website from the Facebook GT support group. I am not good at English, so if I make mistakes,…
Dan Beyer
Living with a Rare Bleeding Disorder My name is Daniel Beyer, but my friends call me Dan. I was diagnosed with Glanzmann Thrombasthenia (GT) as a child, a rare platelet disorder that prevents blood from clotting properly. For much of…
Karen “Kaytee”
My story is long, but since I am one of the oldest diagnosed Glanzmann Thrombasthenia patients in the United States, I must be upfront that my history is not a nice one. I have learned that everyone’s life is not…
Sherry Crutchfield
Hi, my name is Sherry Crutchfield, my husband and I live in Fernandina Beach, FL. I aa 54 years old with GT. I have never known anyone but me with this disorder until I found this current site of Helen…
Joy
I was born in 1944 and named for the great Joy that my parents were feeling. Five years earlier, they had lost their first son to what doctors put down as hemophilia. He died as a result of having undergone…
Denise Kurta
One day, I was on the Internet and came upon the GT website. When I looked at a group picture on the site, I gasped. I could tell who had GT from the tell-tale bruises they had. For the first…
Amelie Iavicoli
Amelie was born on November 13, 2012, at 11:12 in the evening. Aside from a couple of purplish spots on her chest, she weighed just over 7 pounds and was considered a healthy newborn. She established her personality from the…
Sandra Fox
MY GT JOURNEY. I am now 74 years old and living in Australia. This meant I had a long time, 64 years actually, till I was diagnosed with GT. Until the,n I was “just one of those women who bleed”….
Peter Zdziarski
Glanzmann Thrombasthenia (GT) is a rare bleeding disorder that has shaped my life in many ways. I was diagnosed with Glanzmann Thrombasthenia at just eight months old. Over the years, I have learned how to navigate the challenges of this condition,…
Michela Golia
Hi, I’m a 51-year-old woman with Glanzmann thrombasthenia. I was diagnosed at 6, after the death of my older brother, who had the same condition as me but was mistaken for hemophilia. Relatively quiet childhood with various hematomas throughout the…
Vincenzo
I am Anna, and this is the story of Vincenzo, a GT boy born on December 12, 2005, in Naples, Italy. At birth, after a long labor, Vincenzo was born with natural birth, without complications; he presented significant bruises on…
Yosra
My name is Yosra, but I’m known as Tanja in the Group. I’m 24 years old! I was diagnosed with Glanzmann’s when I was six months old. Since my illness is hereditary, my older cousin has the Glanzmann’s, so my…
Dezirya
Dezirya Merritt was born in Sept 2000 on her expected due date, and I was so happy I had finally gotten a girl. I had three boys prior. Well, the doctor noticed she was jaundiced and ordered the unique lamp…
Emily
Hello! I am Emily, a 25-year-old with Glanzmann Thrombasthenia. My journey with GT started when I was only a few hours old. I developed purple marks (later found to be bruises) all over my body. The doctors and nurses called…
Jyll
Hi, my name is Jyll, and I was born on March 24, 1973, in Toledo, Ohio. I was so glad to have found this website through Kaytee, one of my GT sisters because I’m not alone anymore! When I was…
Luísa
August 2006 was a month we were excited about. It would be the month of the birth of our first daughter, Luisa. After some complications and 14 hours of labor, Luisa came to this world through a C-section. She was…
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