Faces of GT
Meet some of the faces of Glanzmann's Thrombasthenia from around the world
Eva Turek-Jewkes
Statistically, GT affects one in one million people, making me one of twenty-five people in Australia who suffer from this disease. Medical opinion is that I’m out of options. Today I wait patiently for a donor in the hope of…
Patrick Muls
Hey! I’m Patrick from Belgium. I was born in 1958. I got diagnosed with GT when I was still an infant. This has influenced my life ever since. No dangerous sports like football (soccer) or so. As the son of…
Pauline Gauthier
My name is Pauline, I was born in France in 1993 and I still live in France. I was diagnosed with GT at 6 months (diagnosis not being possible, at the time, before 6 months). I had many problems with…
Cassandra Peel
Hi, everyone! I’m Cassandra, and I am very thankful to have found such an amazing community in the GT family. I was born and raised in Brooklyn, NY where I was diagnosed with Glanzmann’s Thrombasthenia at Weill Cornell Medical Center…
Md. Kaium Ali Jibon
Hi, my name is Md. Kaium Ali and my nickname is Jibon. I live in Bangladesh with my family. I noticed this website from the Facebook GT support group. I am not good at English, so if I make mistakes…
Dan Beyer
Hi. My name is Daniel Beyer, but my friends call me Dan. As a child, I spent half of my life in the hospital until about the age of twelve. From twelve to my mid-thirties, I did not have many…
Karen “Kaytee”
My story is long but since I am one of the oldest diagnosed Glanzmann’s Thrombasthenia patients in the United States. I must be upfront that my history is not a nice one, but I have learned in life, everyone’s life…
Sherry Crutchfield
Hi my name is Sherry Crutchfield, my husband and I live in Fernandina Beach Fl. I am a 54 years old with GT. I have never known anyone but me with this disorder until I found this curegt site of…
Joy
I was born in 1944 and named for the great Joy that my parents were feeling. Five years earlier they had lost their first son to what doctors put down to haemophilia. He died as a result of having undergone…
Denise Kurta
One day I was on the internet and I came upon the GT web site. When I looked at a group picture on the site I gasped, I could tell who had GT from the tell tale bruises they had….
Amelie Iavicoli
Amelie was born on November 13, 2012 at 11:12 in the evening. She weighed just over 7 pounds and was considered a healthy newborn, aside from a couple purplish spots on her chest. She established her personality from the start,…
Sandra Fox
MY GT JOURNEY. I am now 74 years old and living in Australia. This meant I had a long time, 64 years actually till I was diagnosed with GT. Until then I was “just one of those women who bleed”….
Peter Zdziarski
Below is an update to Peter’s story, originally written by his mom when he was 14 years old. You can find his original story at the bottom of this page. Update – 2020 Hi everyone, I’ve come a long way…
Michela Golia
Hi, I’m a 51-year-old woman with Glanzmann’s thrombasthenia. I was diagnosed at 6, after the death of my older brother, who had the same condition as me but was mistaken for hemophilia. Quite quiet childhood with various hematomas throughout the…
Vincenzo
I am Anna, and this is the story of Vincenzo, a GT boy born on 12 December 2005 in Naples, Italy. At birth, after a long labor, Vincenzo was born with natural birth, without complications; he presented a great bruise…
Yosra
My name is Yosra, but I’m known as Tanja in the Group. I’m 24 years old! I was diagnosed with Glanzmann’s when I was six months. Since my illness is hereditary, my older cousin has the Glanzmann’s, so my mom…
Dezirya
Dezirya Merritt was born in Sept 2000 on her expected due date, and I was all so happy I had finally gotten a girl. I had three boys prior. Well, the doctor noticed she was jaundiced and ordered the special…
Emily
Hello! I am Emily, a 25-year-old with Glanzmann’s Thrombasthenia. My journey with GT started when I was only a few hours old. I developed purple marks (later found to be bruises) all over my body. The doctors and nurses referred…
Jyll
Hi, my name is Jyll and I was born March 24, 1973 in Toledo, Ohio. I was so glad to have found this website through Kaytee, one of my GT sisters because I’m not alone anymore! When I was born…
Luísa
August of 2006 was a month we were waiting for with a great deal of excitement. It would be the month of the birth of our first daughter, Luisa. After some complications and 14 hours of labor, Luisa came to…
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