News

Foundation News & Updates

Shirt Fundraiser

July 31, 2020

We are excited to announce a great way to help raise funds for finding a cure for Glanzmann’s Thrombasthenia. Starting now, Showpony has launched a GT shirt! This shirt is only available for the next 7 days. Help us spread awareness for GT by wearing this limited edition T and sharing this link with your…

Rare Artist Contest

July 29, 2020

Two of our GT patients have entered the 2020 Rare Artist Contest and need your votes for a chance to go to Rare Disease Week in Washington DC! From RareArtist.org: The Rare Artist Contest was established in 2010 to exhibit the unique gifts of individuals affected by rare diseases and to promote the expression of…

Formal Statement Regarding Outside Organizations

July 28, 2020

The Glanzmann’s Research Foundation (GRF), a 501(c)(3) nonprofit corporation, has a mission to increase awareness of Glanzmann’s Thrombasthenia, provide a network of support for families navigating a Glanzmann’s Thrombasthenia diagnosis, and to raise funds for a cure. We would like to formally address the increase in conferences, events, and programs that are being marketed towards…

Foundation Update

July 22, 2020

Hi, If you are new to our community, welcome. If you are back after our brief internet hiatus, welcome back! I want to share a brief history for those of you just discovering our community. My mother, Helen Smith, founded the Glanzmann’s Research Foundation a few years after my little sister, Julia, was diagnosed. It…

Means Report

Julia and Helen Smith on The Means Report

July 17, 2020

When Julia Smith was diagnosed with a rare bleeding disorder as an infant, her mother, Helen, went on a search for answers… and a cure. Helen Smith founded the Glanzmann’s Research Foundation. She has since been honored in the CSRA with the Giving Your Best Award, and on a national level with the Jefferson Award….

Could Bacon Stop Nose Bleeds?

July 1, 2020

Michigan doctors who used cured pork to stop a nosebleed won a 2014 Ig Nobel prize, awarded by the Annals of Improbable Research magazine at Harvard University for especially imaginative scientific achievements. Dr. Sonal Saraiya and her team at the Detroit Medical Center decided to try the folk remedy as a “last resort” after failed…

Julia and Helen Smith

Family’s quest to cure disorder heads to TV show

July 31, 2010

Originally Published on AugustaChronicle.com July 31, 2010 Helen Smith could feel that the baby was wet as she picked her up in the dark bedroom and carried her to the bathroom. It wasn’t until she turned on the light that she saw the blood. “It was blood, everywhere,” Smith said. “She had just nicked her…