Foundation News & Updates

A GT Patient’s Advocacy Journey

March 5, 2023

Esme Vazquez found her calling in life through her work in occupational therapy. She believes having Glanzmann’s Thrombasthenia helps her empathize and better care for the children she works with. Advocating for her patients became a passion that spilled over into her personal life and fueled her drive to advocate for the voiceless in her…

Mom’s Side of Glanzmann’s Thrombasthenia

February 5, 2023

Jessica and her husband, Nick, were informed of Mia’s Glanzmann’s Thrombasthenia diagnosis when Mia was just four months old. Now, two years after that diagnosis, Jessica is her daughter’s biggest advocate and is determined to spread awareness and education throughout her community. Join us with special guest host Glanzmann’s Research Foundation’s secretary, Melissa Zdziarski, as…

The Highs and Lows of Glanzmann’s Thrombasthenia

January 1, 2023

In this episode, we turn inward and speak with our very own Peter Zdziarski and Julia Smith. They allow us to take a glimpse into their lives growing up with Glanzmann’s Thrombasthenia by sharing their highs and lows throughout the years. These two jump outside of their comfort zones to encourage more people within the…

My son needs acute day-to-day and prolonged night-time care, weekly treatment, and routine operations.

My son’s rare life-threatening illness has him bleeding in A&E weekly – I’m worried about the strikes

December 20, 2022

Last Saturday night, I frantically rushed to A&E with my four-year-old son Felix. He has a rare, life-threatening bleeding disorder called Glanzmann’s thrombasthenia. Felix’s condition means his blood has difficulty clotting, which results in spontaneous and life-threatening bleeds at any time, frequently from his nose and mouth. On a day-to-day basis, even a slight bump or scrape in…

Bruised Not Broken: Life with Glanzmann’s Thrombasthenia

December 4, 2022

On this official GRF Podcast, we focus on everything and anything Glanzmann’s Thrombasthenia. From treatments to community spotlights, experts, and of course, the most current updates on the cure. The GRF podcast is sure to have something of interest to the GT community. Please visit our website at and consider donating to help us…

Santa Dash friends raise cash for Wiltshire Air Ambulance charity

November 22, 2022

FOUR friends have helped a Trowbridge schoolboy raise more than £1,300 for the Wiltshire Air Ambulance by joining more than 150 people in a Rudolph and Santa Dash on Sunday. Oliver Brooking and four of his friends raised the cash in sponsorship as a thank you to the Wiltshire Air Ambulance charity for saving his…

Will hemophilia continue to define us? Plus, another bleeding disorder often mistaken for vWD!

October 28, 2022

Patrick shares life post-ankle surgery and wonders if everything from now on will be impacted by hemophilia. Plus, a fantastic interview with Hemophilia of Georgia‘s Director of Advocacy, Michelle Conde, AND members of. Glanzmann’s Research Foundation, Inc., Peter Z, and Taylor Anne. We’ll cap the episode with another Let’s Talk mental health segment on acknowledging…

Goa boy’s rarest blood disorder may be identified as disability

October 26, 2022

PANAJI: Unexplained red and purple bruises began appearing on Jacob Fernandes’ (named changed) body when he was still a toddler. At age two, after several rounds of hospitals and laboratories, Jacob was diagnosed with the rarest of disorders, Glanzmann’s Thrombasthenia, which causes the patient to bleed easily, sometimes for days. Only 500 cases of Glanzmann’s…

Mary M. Gooley Humanitarian of the Year: Esmeralda Vázquez

August 29, 2022

Living with Glanzmann’s thrombasthenia, an ultra-rare disorder, could be daunting for some. But for Esmeralda Vásquez, it’s her reason for giving back, raising her voice, and being a powerful advocate for all people with rare blood and bleeding disorders. Over the years, Esmeralda’s name has become synonymous with health equity and patient-centric care. She is…

Cheyenne McNeilly is battling Glanzmann’s Thrombasthenia

August 15, 2022

Glanzmann’s Thrombasthenia is a rare disorder that causes Cheyenne’s body to bleed constantly. CLEVELAND COUNTY, N.C. (WBTV) – You never, ever know what anyone else might be facing. Please meet Cheyenne McNeilly, a rising seventh-grader at Burns Middle School in Cleveland County. She was born in 2010 in Shelby with a cone-shaped head and some…

Do you have any Glanzmann's Thrombasthenia News that you think would be beneficial to our community? Please fill out our form, and a member will reach out to you shortly.

reCAPTCHA is required.