News

Foundation News & Updates

“I tattooed the same bruises as my son.”

September 9, 2020

Little John Mary suffers from a rare hereditary disease: his platelets are not able to stop bleeding. Siniscola (Nuoro) – A father’s love for his son is all in a simple photo: in the left pane, there are the legs of Giovanni Maria, a child who will turn 4 in October, while those portrayed on…

Rare Artist Contest

August 7, 2020

Two of our GT patients have entered the 2020 Rare Artist Contest and need your votes for a chance to go to Rare Disease Week in Washington DC! Learn More About RareArtist.org Vote for Peter’s Art Vote for Cathy’s Art  

Formal Statement Regarding Outside Organizations

July 28, 2020

The Glanzmann’s Research Foundation (GRF), a 501(c)(3) nonprofit corporation, has a mission to increase awareness of Glanzmann’s Thrombasthenia, provide a network of support for families navigating a Glanzmann’s Thrombasthenia diagnosis, and to raise funds for a cure. We would like to formally address the increase in conferences, events, and programs that are being marketed towards…

Foundation Update

July 22, 2020

Hi, If you are new to our community, welcome. If you are back after our brief internet hiatus, welcome back! I want to share a brief history for those of you just discovering our community. My mother, Helen Smith, founded the Glanzmann’s Research Foundation a few years after my little sister, Julia, was diagnosed. It…

Means Report

Julia and Helen Smith on The Means Report

July 17, 2020

When Julia Smith was diagnosed with a rare bleeding disorder as an infant, her mother, Helen, went on a search for answers… and a cure. Helen Smith founded the Glanzmann’s Research Foundation. She has since been honored in the CSRA with the Giving Your Best Award, and on a national level with the Jefferson Award….

Could Bacon Stop Nose Bleeds?

July 1, 2020

Michigan doctors who used cured pork to stop a nosebleed won a 2014 Ig Nobel prize, awarded by the Annals of Improbable Research magazine at Harvard University for especially imaginative scientific achievements. Dr. Sonal Saraiya and her team at the Detroit Medical Center decided to try the folk remedy as a “last resort” after failed…

Julia and Helen Smith

Family’s quest to cure disorder heads to TV show

July 31, 2010

Originally Published on AugustaChronicle.com July 31, 2010 Helen Smith could feel that the baby was wet as she picked her up in the dark bedroom and carried her to the bathroom. It wasn’t until she turned on the light that she saw the blood. “It was blood, everywhere,” Smith said. “She had just nicked her…