Working towards a cure, and providing hope and help for the present.
Faces of GT
Luísa
August of 2006 was a month we were waiting for with a great deal of excitement. It would be the month of the birth of our first daughter, Luisa. After some complications and 14 hours of labor, Luisa came to this world through C-section. She was brought to me soon after, but would not stop…
Faces of GT
Md. Kaium Ali Jibon
Hi, my name is Md. Kaium Ali and my nickname is Jibon. I live in Bangladesh with my family. I noticed this website from the Facebook GT support group. I am not good at English, so if I make mistakes please pardon me. When I was 1.5 yrs old my mother noticed bleeding from my…
Faces of GT
Amelie Iavicoli
Amelie was born on November 13, 2012 at 11:12 in the evening. She weighed just over 7 pounds and was considered a healthy newborn, aside from a couple purplish spots on her chest. She established her personality from the start, betraying the nurses promises that Amelie would sleep soundly through her first night outside her…
In the News
Gene Therapy, Haemnet & Glanzmann’s Thrombasthenia
This month, Taylor and Peter chat with Luke Pembroke from Haemnet. Luke is the Director of Community Engagement with Haemnet and spearheads their podcast, Haemcast. Haemnet is a specialist research and communications consultancy in the bleeding disorder community. You might be familiar with their name; they conducted the Glanzmann’s 360 survey. It was during a…