Working towards a cure, and providing hope and help for the present.
Glanzmann’s Research Foundation exists to provide information and support to patients, family, and healthcare providers affected by the rare inherited blood clotting disorder Glanzmann’s Thrombasthenia (GT).
We are a a 501(c)3 non-profit with the goal of funding research to find a cure.
Faces of GT
Dan Beyer
Hi. My name is Daniel Beyer, but my friends call me Dan. As a child, I spent half of my life in the hospital until about the age of twelve. From twelve to my mid-thirties, I did not have many problems. When I hit my late thirties, early forties, I began having more problems. In…
Faces of GT
Emily
Hello! I am Emily, a 25-year-old with Glanzmann’s Thrombasthenia. My journey with GT started when I was only a few hours old. I developed purple marks (later found to be bruises) all over my body. The doctors and nurses referred to me as the “blueberry muffin baby”. After numerous tests, including a biopsy of one…
Faces of GT
Amelie Iavicoli
Amelie was born on November 13, 2012 at 11:12 in the evening. She weighed just over 7 pounds and was considered a healthy newborn, aside from a couple purplish spots on her chest. She established her personality from the start, betraying the nurses promises that Amelie would sleep soundly through her first night outside her…
In the News
Rare Across America
Join us for Rare Across America this February and March to meet your new and re-elected legislators, share your story, and make rare diseases a priority in the 117th Congress. Haz clic aquí para obtener información en español y para registrarte. WHEN February 22 – March 5, 2021 (Virtual Congressional meetings on March 3rd and…