Working towards a cure, and providing hope and help for the present.
Faces of GT
Amelie Iavicoli
Amelie was born on November 13, 2012 at 11:12 in the evening. She weighed just over 7 pounds and was considered a healthy newborn, aside from a couple purplish spots on her chest. She established her personality from the start, betraying the nurses promises that Amelie would sleep soundly through her first night outside her…
Faces of GT
Karen “Kaytee”
My story is long but since I am one of the oldest diagnosed Glanzmann’s Thrombasthenia patients in the United States. I must be upfront that my history is not a nice one, but I have learned in life, everyone’s life is not all peaches and cream. It is also taken from a couple of e-mails…
Faces of GT
Jyll
Hi, my name is Jyll and I was born March 24, 1973 in Toledo, Ohio. I was so glad to have found this website through Kaytee, one of my GT sisters because I’m not alone anymore! When I was born my umbilical cord would not stop bleeding. After three weeks it was cauterized. I was…
In the News
Mary M. Gooley Humanitarian of the Year: Esmeralda Vázquez
Living with Glanzmann’s thrombasthenia, an ultra-rare disorder, could be daunting for some. But for Esmeralda Vásquez, it’s her reason for giving back, raising her voice, and being a powerful advocate for all people with rare blood and bleeding disorders. Over the years, Esmeralda’s name has become synonymous with health equity and patient-centric care. She is…