Working towards a cure, and providing hope and help for the present.

Glanzmann’s Research Foundation exists to provide information and support to patients, family, and healthcare providers affected by the rare inherited blood clotting disorder Glanzmann’s Thrombasthenia (GT).

We are a a 501(c)3 non-profit with the goal of funding research to find a cure.

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Faces of GT

Yosra

My name is Yosra but I’m known as Tanja in the Group. I’m 24 years old! I’ve been diagnosed with Glanzmann’s when I was 6 Months. Since my illness is hereditary, my older cousin has the Glanzmann’s so my mom had an idea about it. And when I was a baby mom found some bruises…

Faces of GT

Sandra Fox

MY GT JOURNEY. I am now 74 years old and living in Australia. This meant I had a long time, 64 years actually till I was diagnosed with GT. Until then I was “just one of those women who bleed”. My periods lasted 10 days and even on the pill they lasted 7 days. I…

Faces of GT

Joy

I was born in 1944 and named for the great Joy that my parents were feeling. Five years earlier they had lost their first son to what doctors put down to haemophilia. He died as a result of having undergone a splenectomy – supposedly, at that time, the cure all to severe bleeding problems!! He…

Rare Across America

January 4, 2021

Join us for Rare Across America this February and March to meet your new and re-elected legislators, share your story, and make rare diseases a priority in the 117th Congress. Haz clic aquí para obtener información en español y para registrarte. WHEN February 22 – March 5, 2021 (Virtual Congressional meetings on March 3rd and…