Working towards a cure, and providing hope and help for the present.

Glanzmann’s Research Foundation exists to provide information and support to patients, family, and healthcare providers affected by the rare inherited blood clotting disorder Glanzmann’s Thrombasthenia (GT).

We are a a 501(c)3 non-profit with the goal of funding research to find a cure.

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Faces of GT

Karen “Kaytee”

My story is long but since I am one of the oldest diagnosed Glanzmann’s Thrombasthenia patients in the United States. I must be upfront that my history is not a nice one, but I have learned in life, everyone’s life is not all peaches and cream. It is also taken from a couple of e-mails…

Faces of GT

Yosra

My name is Yosra but I’m known as Tanja in the Group. I’m 24 years old! I’ve been diagnosed with Glanzmann’s when I was 6 Months. Since my illness is hereditary, my older cousin has the Glanzmann’s so my mom had an idea about it. And when I was a baby mom found some bruises…

Faces of GT

Peter Zdziarski

Below is an update to Peter’s story, originally written by his mom when he was 14 years old. You can find his original story at the bottom of this page. Update – 2020 Hi everyone, I’ve come a long way since 14 years old. I am now turning 28 and doing great. The older I…

Rare Across America

January 4, 2021

Join us for Rare Across America this February and March to meet your new and re-elected legislators, share your story, and make rare diseases a priority in the 117th Congress. Haz clic aquí para obtener información en español y para registrarte. WHEN February 22 – March 5, 2021 (Virtual Congressional meetings on March 3rd and…