Working towards a cure, and providing hope and help for the present.

Glanzmann’s Research Foundation exists to provide information and support to patients, family, and healthcare providers affected by the rare inherited blood clotting disorder Glanzmann’s Thrombasthenia (GT).

We are a a 501(c)3 non-profit with the goal of funding research to find a cure.

helena-lopes-PGnqT0rXWLs-unsplash

Faces of GT

Joy

I was born in 1944 and named for the great Joy that my parents were feeling. Five years earlier they had lost their first son to what doctors put down to haemophilia. He died as a result of having undergone a splenectomy – supposedly, at that time, the cure all to severe bleeding problems!! He…

Faces of GT

Yosra

My name is Yosra but I’m known as Tanja in the Group. I’m 24 years old! I’ve been diagnosed with Glanzmann’s when I was 6 Months. Since my illness is hereditary, my older cousin has the Glanzmann’s so my mom had an idea about it. And when I was a baby mom found some bruises…

Faces of GT

Dan Beyer

Hi. My name is Daniel Beyer, but my friends call me Dan. As a child, I spent half of my life in the hospital until about the age of twelve. From twelve to my mid-thirties, I did not have many problems. When I hit my late thirties, early forties, I began having more problems. In…

Rare Across America

January 4, 2021

Join us for Rare Across America this February and March to meet your new and re-elected legislators, share your story, and make rare diseases a priority in the 117th Congress. Haz clic aquí para obtener información en español y para registrarte. WHEN February 22 – March 5, 2021 (Virtual Congressional meetings on March 3rd and…