Working towards a cure, and providing hope and help for the present.

Glanzmann’s Research Foundation exists to provide information and support to patients, family, and healthcare providers affected by the rare inherited blood clotting disorder Glanzmann’s Thrombasthenia (GT).

We are a a 501(c)3 non-profit with the goal of funding research to find a cure.

helena-lopes-PGnqT0rXWLs-unsplash

Faces of GT

Dan Beyer

Hi. My name is Daniel Beyer, but my friends call me Dan. As a child, I spent half of my life in the hospital until about the age of twelve. From twelve to my mid-thirties, I did not have many problems. When I hit my late thirties, early forties, I began having more problems. In…

Faces of GT

Peter Zdziarski

Below is an update to Peter’s story, originally written by his mom when he was 14 years old. You can find his original story at the bottom of this page. Update – 2020 Hi everyone, I’ve come a long way since 14 years old. I am now turning 28 and doing great. The older I…

Faces of GT

Yosra

My name is Yosra but I’m known as Tanja in the Group. I’m 24 years old! I’ve been diagnosed with Glanzmann’s when I was 6 Months. Since my illness is hereditary, my older cousin has the Glanzmann’s so my mom had an idea about it. And when I was a baby mom found some bruises…

My son has a life-threatening condition – but my best friend has the same one, which gives me hope

October 25, 2020

When her son was born with an extremely rare genetic condition, Annette Kellow 37, was devastated. But a strange coincidence is helping her through. I was chatting to my best friend, Irene, at our favorite nail salon when the technician accidentally nicked her skin, and her finger started to bleed. ‘I’ve paid to bleed,’ joked…