Working towards a cure for Glanzmann's Thrombasthenia, & providing hope & help for the present.

Glanzmann's Research Foundation is a dedicated platform providing comprehensive information and support to patients, families, and healthcare providers affected by the rare inherited blood clotting disorder, Glanzmann's Thrombasthenia (GT).

As a 501(c)(3) non-profit, our primary goal is to fund research aimed at finding a cure for Glanzmann's Thrombasthenia. We strive to create a community where individuals affected by GT can find resources, connect with others, and contribute to the fight against this rare condition.

Faces of GT

Our Faces of GT section showcases the stories of individuals living with Glanzmann's Thrombasthenia, offering a glimpse into their lives and experiences. We believe that sharing these stories can help foster understanding and empathy for those affected by GT.

A woman with glasses holding a glass of wine.

Faces of GT

Joy

I was born in 1944 and named for the great Joy that my parents were feeling. Five years earlier they had lost their first son to what doctors put down to haemophilia. He died as a result of having undergone a splenectomy – supposedly, at that time, the cure all to severe bleeding problems!! He…

A white person icon on a green background representing glanzmann's thrombasthenia.

Faces of GT

Michela Golia

Hi, I’m a 51-year-old woman with Glanzmann’s thrombasthenia. I was diagnosed at 6, after the death of my older brother, who had the same condition as me but was mistaken for hemophilia. Quite quiet childhood with various hematomas throughout the body. At 13, I started hospitalization due to bleeding from menstruation. Endless transfusions and tranex…

A woman in a black hijab is posing for a photo, embodying diversity and inclusion.

Faces of GT

Yosra

My name is Yosra, but I’m known as Tanja in the Group. I’m 24 years old! I was diagnosed with Glanzmann’s when I was six months. Since my illness is hereditary, my older cousin has the Glanzmann’s, so my mom had an idea about it. And when I was a baby, mom found bruises and…

In our News section, we keep you updated with the latest developments in Glanzmann's Thrombasthenia research and treatment. Stay informed about the strides we're making in our mission to cure GT.

Physical Activity and Glanzmann’s Thrombasthenia

April 22, 2024

Glanzmann’s Thrombasthenia is a rare bleeding disorder characterized by the inability of blood to clot correctly due to a deficiency in platelet function. While managing this condition requires careful attention to various factors, including bleeding episodes and cardiovascular health, integrating physical activity into one’s lifestyle can improve overall well-being. Understanding Glanzmann’s Thrombasthenia Glanzmann’s Thrombasthenia poses…

Our Resources section is a comprehensive guide for anyone seeking information about Glanzmann's Thrombasthenia. From frequently asked questions to detailed information for doctors, we aim to provide a wealth of knowledge for those dealing with GT.