Working towards a cure for Glanzmann Thrombasthenia, & providing hope & help for the present.

Glanzmann's Research Foundation is a dedicated platform providing comprehensive information and support to patients, families, and healthcare providers affected by the rare inherited blood clotting disorder, Glanzmann Thrombasthenia (GT).

As a 501(c)(3) non-profit, our primary goal is to fund research aimed at finding a cure for Glanzmann Thrombasthenia. We strive to create a community where individuals affected by GT can find resources, connect with others, and contribute to the fight against this rare condition.

Our Mission

Educational Conference Series

Faces of GT

Our Faces of GT section showcases the stories of individuals living with Glanzmann Thrombasthenia, offering a glimpse into their lives and experiences. We believe that sharing these stories can help foster understanding and empathy for those affected by GT.

A young girl with glanzmann's thrombasthenia is smiling while sitting on a couch.

Faces of GT

Amelie Iavicoli

Amelie was born on November 13, 2012, at 11:12 in the evening. Aside from a couple of purplish spots on her chest, she weighed just over 7 pounds and was considered a healthy newborn. She established her personality from the start, betraying the nurse’s promises that Amelie would sleep soundly through her first night outside…

Faces of GT

Patrick Muls

Hey! I’m Patrick from Belgium. I was born in 1958. I was diagnosed with GT when I was still an infant. This has influenced my life ever since. No dangerous sports like football (soccer) or so. As the son of a fighter pilot, I also wanted to fly jets but knew that dream would never…

Faces of GT

Michela Golia

Hi, I’m a 51-year-old woman with Glanzmann thrombasthenia. I was diagnosed at 6, after the death of my older brother, who had the same condition as me but was mistaken for hemophilia. Relatively quiet childhood with various hematomas throughout the body. At 13, I started hospitalization due to bleeding from menstruation. I took endless transfusions…

In the News

New Case Report Highlights Importance of Gum Health in Glanzmann Thrombasthenia

August 5, 2026

A newly published case report describes a woman with Glanzmann Thrombasthenia (GT) who developed life threatening bleeding after routine periodontal (gum) treatment despite receiving recommended preventive treatment with recombinant Factor VIIa (NovoSeven). The patient had significant periodontal inflammation before treatment. Although she received standard preventive care, including recombinant Factor VIIa and local bleeding control measures,…
New Study Finds Blood Clots Are Rare in People With Rare Bleeding Disorders

August 3, 2026

A newly published study in Thrombosis Journal has provided one of the largest analyses to date examining the risk of thrombosis, or blood clots, in people living with rare bleeding disorders. The retrospective study evaluated 1,251 patients with a variety of rare bleeding disorders, including 62 individuals with Glanzmann Thrombasthenia (GT), to better understand how…
Arulnithi shares regret of missing this sports drama in his career: ‘I’m not sure if I could have pulled it off’

July 15, 2026

Arulnithi, who has back-to-back releases lined up for him, is currently promoting the release of Arulvaan, directed by Ganesh Vinayakan. While he has been a part of many promising and gripping films, the actor recently revealed his regret at not working on Eetti (2015), a sports drama from director Ravi Arasu. The film eventually went…
The Discovery of Glanzmann Thrombasthenia

May 26, 2026

Early Discovery of Glanzmann Thrombasthenia In 1918, Swiss pediatrician Eduard Glanzmann published the first detailed description of an ultra-rare inherited bleeding disorder that would later bear his name. The discovery of Glanzmann Thrombasthenia was a major milestone in hematology and transformed the scientific understanding of platelet function disorders and abnormal blood clotting. Dr. Glanzmann’s groundbreaking…
Apollo Hospitals Navi Mumbai Achieves Landmark Success in Robotic Hysterectomy for Patient with Rare, Life-Threatening Bleeding Disorder

March 5, 2026

NAVI MUMBAI, 5 MARCH 2026 (SACHIN MURDESHWAR 8108510506): For years, every menstrual cycle for 37-year-old Ms. Neelam meant a medical emergency. Due to a rare and life-threatening bleeding disorder, she required blood transfusions almost every month just to manage the severe blood loss caused by her periods. Doctors at Apollo Hospitals Navi Mumbai have now…
From a Small Message Board to a Global Glanzmann Thrombasthenia Community

March 5, 2026

Peter Zdziarski, Founder and Marketing Director of Glanzmann Thrombasthenia Advocacy Network, shared a post on LinkedIn: “This Bleeding Disorders Awareness Month, I want people to understand that the Glanzmann’s Research Foundation,Inc. has been here far longer than most realize. For nearly 30 years, we’ve maintained an online presence so individuals living with Glanzmann Thrombasthenia have…
Staying Safe on the Trail: The Road Less Traveled

June 30, 2025

By Elizabeth G. Harvey Can you embrace outdoor adventures with Glanzmann Thrombasthenia (GT) or a bleeding disorder? I used to think the answer was a resounding NO! Live safely. Avoid potential harm at all costs. But doesn’t your soul crave overcoming challenges and being thrilled? For those of us living with a platelet disorder, even…
Can You Lift With a Bleeding Disorder?

March 9, 2025

By Pauline Gth & Peter Zdziarski Can you safely lift weights with Glanzmann Thrombasthenia or another bleeding disorder? In many cases, yes. With proper precautions, strength training and resistance exercises can help improve muscle strength, joint stability, mobility, and overall health. People living with GT, hemophilia, or Von Willebrand disease often need to modify workouts,…
Honoring the Women of the Glanzmann Thrombasthenia Community on International Women’s Day

March 8, 2025

Today, on International Women’s Day, we celebrate the remarkable women in the Glanzmann Thrombasthenia (GT) community. From patients to mothers, sisters, caregivers, and advocates, these women embody strength, resilience, and unwavering dedication. The Strength of GT Patients Women living with Glanzmann Thrombasthenia face unique challenges daily. They show immense courage, from navigating spontaneous bleeding episodes…
Introducing Our New Blog: Showcasing Strength, Talent, and Life with Glanzmann Thrombasthenia

February 21, 2025

We have exciting news! With Rare Disease Day and GT Awareness Day right around the corner, The Glanzmann’s Research Foundation is launching a dedicated blog section on our website, and we need YOU to be a part of it! This new space will be a platform for individuals living with Glanzmann thrombasthenia to share their…

Our Resources section is a comprehensive guide for anyone seeking information about Glanzmann Thrombasthenia. From frequently asked questions to detailed information for doctors, we aim to provide a wealth of knowledge for those dealing with GT.