Mary M. Gooley Humanitarian of the Year: Esmeralda Vázquez

Advocating for Health Equity and Patient-Centered Care

Living with Glanzmann Thrombasthenia, an ultra-rare bleeding disorder, presents unique challenges. However, for Esmeralda Vásquez, it has become a driving force for advocacy. Her personal experience has fueled her passion for giving back, raising awareness, and amplifying the voices of those affected by rare blood and bleeding disorders.

Over the years, Esmeralda Vásquez has emerged as a leader in the fight for health equity and patient-centered care. She is widely recognized for empowering patients and ensuring that the voices of subject matter experts are heard during critical healthcare decision-making processes.

Recognizing a True Advocate: The Mary M. Gooley Humanitarian of the Year Award

The Mary M. Gooley Humanitarian of the Year Award honors non-provider Hemophilia Treatment Center (HTC) staff members dedicated to supporting patients and their families. This prestigious award acknowledges individuals who go above and beyond in their commitment to patient care.

By awarding Esmeralda Vásquez, the National Foundation for Hemophilia (NFH) recognizes her compassion, leadership, and unwavering advocacy for individuals with Glanzmann Thrombasthenia and other rare bleeding disorders. Her work has significantly improved the quality of life for patients and their families, reinforcing the importance of patient-focused care in the rare disease community.

A Lasting Impact on the Glanzmann Thrombasthenia Community

Esmeralda’s dedication to the Glanzmann Thrombasthenia and rare disease communities sets a powerful example for future advocates. Her commitment to healthcare accessibility, patient representation, and rare disease awareness continues to inspire and drive change.

As a leading voice in the rare blood disorder community, Esmeralda Vásquez exemplifies the true spirit of advocacy—ensuring that every patient’s experience matters.

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