Rare Across America

A rare poster showcasing Glanzmann's Thrombasthenia across America.
A rare poster showcasing Glanzmann's Thrombasthenia across America.

January 04, 2021


Join us for Rare Across America this February and March to meet your new and re-elected legislators, share your story, and make rare diseases a priority in the 117th Congress.

Haz clic aquí para obtener información en español y para registrarte.

February 22 – March 5, 2021 (Virtual Congressional meetings on March 3rd and 4th)

Virtual meetings with your Senators and Representative AND virtual advocacy events. Rare Disease Legislative Advocates (RDLA) organizes meetings for rare disease advocates with their Members of Congress and/or the Member’s staff. Meetings will take place virtually on March 3rd and 4th. The RDLA team also helps to prepare advocates for their meetings, provides legislative resource materials, and hosts pre-meeting training webinars.

Week 1: RARE Readiness
Monday, 2/22: Selfie Monday—Post a picture on social media and tag #RareAcrossAmerica
Wednesday, 2/24: Fast Forward for RARE Practice Your Pitch Webinar
Thursday, 2/25: Virtual Rare Disease Caucus Briefing
Friday, 2/26: Share Your Rare Story—Take a video and post on social media and tag #RareAcrossAmerica

Week 2: RARE Rally
Monday, 3/1: NIH Virtual Event
Tuesday, 3/2: Prepare for Your Virtual Hill Meetings (One pagers and resources at www.RareAcrossAmerica.org)
Wednesday, 3/3: Virtual Hill Meetings with Senators (12-5 pm ET)
Thursday, 3/4: Virtual Hill Meetings with Representatives (12-5 pm ET)

No prior experience necessary. Registration for this event and all RDLA events are free for rare disease advocates. More information at www.RareAcrossAmerica.org.

SAVE THE DATE: The Rare Across America training webinar will take place on February 4th at 2:00 pm ET, First Time Advocates Webinar on February 9th at 2:00 pm ET, and the Team Leaders Webinar on February 11th at 2 pm ET.


For more information, visit www.RareAcrossAmerica.org or contact RDLA Program Coordinator, Katelyn Laws, at klaws@everylifefoundation.org.