Picking up the torch her mother lit wasn’t what Taylor Burtz had planned for her life. But after Helen Proctor Smith died in October 2019, Burtz knew she and her sister, Julia, had to carry on her mother’s fight for a cure for a rare blood disease known as Glanzmann’s Thrombasthenia. “Me taking over was […]
April’s episode of Bruised Not Broken: Life with Glanzmann’s Thrombasthenia features Dr. Alan Michelson. Dr. Michelson’s achievements throughout his almost 50-year career in medicine are numerous. He is currently Professor of Pediatrics and Medicine, Emeritus at Harvard Medical School. He also serves as the Center for Platelet Research Studies’ Director Emeritus. He was formerly the […]
Esme Vazquez found her calling in life through her work in occupational therapy. She believes having Glanzmann’s Thrombasthenia helps her empathize and better care for the children she works with. Advocating for her patients became a passion that spilled over into her personal life and fueled her drive to advocate for the voiceless in her […]
Jessica and her husband, Nick, were informed of Mia’s Glanzmann’s Thrombasthenia diagnosis when Mia was just four months old. Now, two years after that diagnosis, Jessica is her daughter’s biggest advocate and is determined to spread awareness and education throughout her community. Join us with special guest host Glanzmann’s Research Foundation’s secretary, Melissa Zdziarski, as […]
In this episode, we turn inward and speak with our very own Peter Zdziarski and Julia Smith. They allow us to take a glimpse into their lives growing up with Glanzmann’s Thrombasthenia by sharing their highs and lows throughout the years. These two jump outside of their comfort zones to encourage more people within the […]
Last Saturday night, I frantically rushed to A&E with my four-year-old son Felix. He has a rare, life-threatening bleeding disorder called Glanzmann’s thrombasthenia. Felix’s condition means his blood has difficulty clotting, which results in spontaneous and life-threatening bleeds at any time, frequently from his nose and mouth. On a day-to-day basis, even a slight bump or scrape in […]
On this official GRF Podcast, we focus on everything and anything Glanzmann’s Thrombasthenia. From treatments to community spotlights, experts, and of course, the most current updates on the cure. The GRF podcast is sure to have something of interest to the GT community. Please visit our website at curegt.org and consider donating to help us […]
FOUR friends have helped a Trowbridge schoolboy raise more than £1,300 for the Wiltshire Air Ambulance by joining more than 150 people in a Rudolph and Santa Dash on Sunday. Oliver Brooking and four of his friends raised the cash in sponsorship as a thank you to the Wiltshire Air Ambulance charity for saving his […]
Patrick shares life post-ankle surgery and wonders if everything from now on will be impacted by hemophilia. Plus, a fantastic interview with Hemophilia of Georgia‘s Director of Advocacy, Michelle Conde, AND members of. Glanzmann’s Research Foundation, Inc., Peter Z, and Taylor Anne. We’ll cap the episode with another Let’s Talk mental health segment on acknowledging […]
PANAJI: Unexplained red and purple bruises began appearing on Jacob Fernandes’ (named changed) body when he was still a toddler. At age two, after several rounds of hospitals and laboratories, Jacob was diagnosed with the rarest of disorders, Glanzmann’s Thrombasthenia, which causes the patient to bleed easily, sometimes for days. Only 500 cases of Glanzmann’s […]