Foundation News & Updates

Early Discovery of Glanzmann Thrombasthenia In 1918, Swiss pediatrician Eduard Glanzmann published the first detailed description of an ultra-rare inherited bleeding disorder that would later bear his name. The discovery of Glanzmann Thrombasthenia was a major milestone in hematology and transformed the scientific understanding of platelet function disorders and abnormal blood clotting. Dr. Glanzmann’s groundbreaking…

NAVI MUMBAI, 5 MARCH 2026 (SACHIN MURDESHWAR 8108510506): For years, every menstrual cycle for 37-year-old Ms. Neelam meant a medical emergency. Due to a rare and life-threatening bleeding disorder, she required blood transfusions almost every month just to manage the severe blood loss caused by her periods. Doctors at Apollo Hospitals Navi Mumbai have now…

Peter Zdziarski, Founder and Marketing Director of Glanzmann Thrombasthenia Advocacy Network, shared a post on LinkedIn: “This Bleeding Disorders Awareness Month, I want people to understand that the Glanzmann’s Research Foundation,Inc. has been here far longer than most realize. For nearly 30 years, we’ve maintained an online presence so individuals living with Glanzmann Thrombasthenia have…

Today, the Glanzmann Thrombasthenia Support Group proudly celebrates its 18th anniversary, marking nearly two decades of compassion, connection, and shared purpose among patients and families affected by Glanzmann Thrombasthenia (GT). What began as a small online gathering of individuals seeking understanding has evolved into a global community where members exchange advice, share personal experiences, and…

By Elizabeth G. Harvey Can you embrace outdoor adventures with Glanzmann Thrombasthenia (GT) or a bleeding disorder? I used to think the answer was a resounding NO! Live safely. Avoid potential harm at all costs. But doesn’t your soul crave overcoming challenges and being thrilled? For those of us living with a platelet disorder, even…

By Pauline Gth & Peter Zdziarski Can you safely lift weights with Glanzmann Thrombasthenia or another bleeding disorder? In many cases, yes. With proper precautions, strength training and resistance exercises can help improve muscle strength, joint stability, mobility, and overall health. People living with GT, hemophilia, or Von Willebrand disease often need to modify workouts,…

Today, on International Women’s Day, we celebrate the remarkable women in the Glanzmann Thrombasthenia (GT) community. From patients to mothers, sisters, caregivers, and advocates, these women embody strength, resilience, and unwavering dedication. The Strength of GT Patients Women living with Glanzmann Thrombasthenia face unique challenges daily. They show immense courage, from navigating spontaneous bleeding episodes…

We have exciting news! With Rare Disease Day and GT Awareness Day right around the corner, The Glanzmann’s Research Foundation is launching a dedicated blog section on our website, and we need YOU to be a part of it! This new space will be a platform for individuals living with Glanzmann thrombasthenia to share their…

Living with a rare disease like Glanzmann Thrombasthenia (GT) can feel isolating, but it doesn’t have to be. Finding a supportive community can make all the difference in navigating the challenges of this condition. At the Glanzmann’s Research Foundation (GRF), we know that connection, shared experiences, and support are vital in improving quality of life….

Every year, Rare Disease Day (February 28) and Glanzmann Thrombasthenia Awareness Day (March 1) provide an opportunity to shine a light on conditions that often go unnoticed. With over 300 million people worldwide living with a rare disease, awareness is the first step toward progress—whether it’s in research, treatment, or support for those affected. One…

Make a Difference in the Lives of Those with Glanzmann Thrombasthenia Giving Tuesday is a day for generosity, community, and hope. At the Glanzmann’s Research Foundation (GRF), we’re committed to advancing research for a cure for Glanzmann Thrombasthenia (GT), a rare and challenging bleeding disorder. With your support, we can continue funding groundbreaking research and…

We’re honored to announce that we’ve been selected as a 2024 RAREis Global Advocate Grant recipient by Amgen’s RAREis program. This recognition underscores our unwavering commitment to the Glanzmann Thrombasthenia community and the rare disease community at large, who inspire us every day with their strength and resilience amid care and research barriers. With this…