POSTED
February 21, 2025
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We have exciting news! With Rare Disease Day and GT Awareness Day right around the corner, The Glanzmann’s Research Foundation is launching a dedicated blog section on our website, and we need YOU to be a part of it! This new space will be a platform for individuals living with Glanzmann thrombasthenia to share their unique experiences, talents, and skills—proving that this rare bleeding disorder does not define or limit them.
Living with Glanzmann thrombasthenia comes with challenges but does not diminish the incredible things individuals can accomplish. Whether you are an artist, athlete, writer, musician, scientist, entrepreneur, or have any other special skill or passion, we want to highlight your journey. By sharing these stories, we hope to:
We seek authors who want to share their persona, insights, and expertise. Your blog post could include:
If you’re interested in being featured on our blog, we’d love to hear from you! No writing experience is necessary—just a willingness to share your story. The blogs will be edited before posting to ensure grammar and translation are easy so that those with GT who speak other languages can also enjoy them. Email us at in**@cu****.org with a brief introduction about yourself and what you’d like to write about.
Together, we can amplify the voices of the Glanzmann thrombasthenia community, spread awareness, and celebrate the remarkable people who make this community so unique. Let’s show the world that Glanzmann thrombasthenia is just one part of the story—and that every individual has a powerful narrative.
We can’t wait to read and share your stories with the world!