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Foundation News & Updates

The Highs and Lows of Glanzmann’s Thrombasthenia

January 1, 2023

In this episode, we turn inward and speak with our very own Peter Zdziarski and Julia Smith. They allow us to take a glimpse into their lives growing up with Glanzmann’s Thrombasthenia by sharing their highs and lows throughout the years. These two jump outside of their comfort zones to encourage more people within the…

When I was first diagnosed with Glanzmann Thrombasthenia, my parents were told there were less than 200 cases in the world.

June 26, 2019

Original post from Conversations: Find A Cure Magazine written by Douglas Lowell Conversations: Aidana, hi. Thanks for speaking with CONVERSATIONS today. Tell us about Glanzmann Thrombasthenia (GT))? What type of disease is this? How old were you when you were diagnosed? Aidana: Hello! Glanzmann Thrombasthenia (GT) is a rare blood disorder. The platelet count in…

Julia and Helen Smith

Family’s quest to cure disorder heads to TV show

July 31, 2010

Originally Published on AugustaChronicle.com July 31, 2010 Helen Smith could feel that the baby was wet as she picked her up in the dark bedroom and carried her to the bathroom. It wasn’t until she turned on the light that she saw the blood. “It was blood, everywhere,” Smith said. “She had just nicked her…

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